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I realized he was smiling after I took the picture!  He loves his great-grandma!







Oh how I have longed to write this...it's time to go home.  On Monday we were moved into a room with Josh.  This is our preparation for going home.  We have been taking care of him ourselves.  The nurses are available if we need them.  We are happy for this time to transition. 

Joshua had a sleep study on Sunday night.  It was a follow-up from his study four weeks ago.  They said that he had improvement from his last study but he still had periods of apnea.  Therefore, they are sending him home on a monitor.  He'll have to wear it while he's sleeping.  A loud alarm will go off anytime he stops breathing for a certain period of time. 



His new splint!





 

Also, he has a splint that he will be wearing at different intervals throughout the day.  Since his right foot is slightly deformed, the splint will be used to loosen the muscles and help reposition his foot. 



We must say, we will miss the people here.  It was bittersweet leaving the NICU to go to our room.  It means progress and finally being together as a family.  With that being said, we will miss our new friends.  Joshua has gotten wonderful care and the staff is absolutely amazing.  It has been hard to leave Joshua every night and periodically throughout the day but knowing he was getting exceptional care helped us sleep at night. 





We're excited to be going home tomorrow.  It seems surreal.  After being here for 48 days, it's time.  Today was our first full day with him.  We spend a majority of it holding him and playing with him.  We're making up for lost time!  We'll be coming back next week for a follow-up appointment in which they will do another ultrasound to check his ventricles.  Joshua will continue to have peiodic appointments throughout this upcoming year.  Please continue to check our blog.  Joshua's story is not done yet!

--Kim, Matt, and Josh (finally!!!)