On Memorial Day, we noticed fluid leaking from Joshua’s back. The good news is that it didn’t look like CSF. However, anything leaking is bad news. The day after his surgery for the second closure I asked the neurosurgeon about this area that was in the middle of the incision that looked white. The last time Josh had something leaking from his back, it started with a white area that slowly broke down and CSF leaked out. The doctor said that we needed to watch that area to make sure nothing came of it but as I’ve told you, something started leaking out. It looked like pus of some sort. The nurse paged neurosurgery and they told us to stop his feeds at 4am in case they felt that he needed to go to surgery to do another closure. We got to the NICU early on Tuesday morning hoping that we wouldn’t miss the doctor doing his rounds. He hadn’t been by yet so we waited and waited. It turned out that he was in surgery and wasn’t able to do rounds in the morning. Of course he came in the afternoon while we were gone. He said that he wanted to continue to watch it but would talk to us in the morning. Again we got to the NICU right away this morning. We got there just before the neurosurgeon did his rounds. He looked at it again and decided that he needed to put some extra stitches in the incision because the stitches that are there are starting to stretch and open. Therefore, tomorrow Joshua is scheduled to go down for surgery again. Rather than opening the entire incision or cutting any of the current stitches, he will just put additional stitches in the area that is starting to stretch. After that they will continue to put gauze on the incision in hopes to remove any dead cells. When the surgery is finished, the neurosurgeon said that he wanted to watch it for about 10 days or so.
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