Leaking still? How?

We're still here.  I feel like we've been here for months and months.  So much has changed in our lives in such a short period of time.  It's a very weird feeling. 

Joshua is doing good.  As you can see from the picture above, he's been better...but he still looks cute!  :)  When his neurosuregeon checked him out this morning, he noticed that Josh is still leaking CSF.  Grrrr.  He shouldn't be leaking CSF still.  The one catheter should have been enough.  After they added the second, that definitely should've been enough.  Therefore, the doctor tilted him even more.  His bottom is at an incline which should move the fluid towards his head and allow it to drain.  The neurosurgeon wants to wait 3 more days to see if Joshua's back will heal and stop leaking CSF.  If it doesn't stop leaking by that point, the doctor wants to talk to the plastic surgeons about going back in the incision and pulling fat and tissue over the area that is leaking to help it stop.  We really don't want him to have to undergo yet another surgery, especially one that would put the healing for his incision back at square one.  We are praying that his incision would dry up independent of the plastic surgeons.

When the neurosurgeon came up, not only did he find more fluid on the gauze, but he ordered for Joshua to have a head ultrasound so that he could take a look at the ventricles again.  They needed to take the bandage off to do the ultrasound.  We were very interested to see what his catheters look like.  There are two one inch incisions on both the left and right side of his head.  The catheters are stitched in place.  It's hard to see but we know that they are helping him, which makes it a bit easier.  Good news is that there is a bit of peach fuzz growing back where they shaved my baby's head! 

I will say it again and again...we appreciate all of your mail, e-mails, phone calls, and texts.  It is all so encouraging and helps us get from one day to the next.  Most of all though, we are thankful for your prayers.  Our biggest prayer right now is that Joshua won't need additional surgery for his back.